Thank you to everyone for your thoughts and prayers for our Cecylia! We can not thank you enough for all your support! We are truly blessed to have the friends and family we do!
We’ve created this website to keep friends and family updated. We can’t tell you enough how much we appreciate your prayers, support, and words of hope and encouragement during this time!
On July 12, I took Cecylia, my (then) 3 year old, to the doctor because she had fevers and I was thinking she had a virus. Her pediatrician didn’t like how distended her stomach looked so she sent us to R.O. Beaumont for an x-ray. From there, the doctors wanted an ultra-sound, and after that the bad news started. They admitted my little girl and started prepping her for a CT scan. The next morning, Cecylia had a biopsy and a port put in so that they can start her chemo. That evening we heard that it is, officially, a Stage 4 Wilms Tumor. After what felt like a lot of waiting, we found out on Monday, July 16, that the kind of Wilms Tumor it is, is considered “Favorable Histology” (that is the best of the four options).
After her first six weeks of chemo, Cecylia had a CT scan. They were able to see that her left lung was now clear of cancer. However, the tumor on her kidney was too large to remove at that time, and her right lung still had two small nodules (5 mm) that needed to be removed. That surgery was performed at Mott’s Children’s Hospital in Ann Arbor on September 4. The pathology showed that less than 5% of these tiny nodules were still active cancer cells. That information meant that Cecylia would have radiation to her lungs and start a harder chemo regimen.
Cecylia had very extensive surgery on November 1 at Mott’s Children’s Hospital. The tumor was still in her IVC (the main vein attached to the heart), so the doctors had to do open heart bypass surgery in order to make sure that the tumor was completely removed from that vein. They also removed her kidney and the rest of the tumor. The pathology on this tumor was good – it was close to 100% necrotic (or dead) so the chemo worked really well. Cecylia had more radiation, but this time to her abdomen after this surgery.
Cecylia finished chemo on April 11, 2013. Cecylia is now getting ready to turn 6 years old and is getting ready for her 2 year off treatment scan.
I want everyone to pray hard and send positive thoughts for my little girl and her sister. Cecylia is a great big sister to our Ainsley, our almost 5 year old. They are only one year and a day apart, so they are best friends. We would like daily prayers and positive thoughts for Cecylia to remain cancer-free and for Ainsley to remain emotionally healthy. I will be updating this blog so that you will know what is going on, and so you know what to pray for!