It’s been a while since I posted. Here’s where we’re at… Cecylia is doing really well physically and emotionally. Her CT from being three months off treatment was great and she continues to be cancer-free! Praise God!
She and Ainsley are doing really well emotionally. They are having a really great summer! Both girls are gearing up for preschool, Jeff and I will be coaching their soccer team this fall, and I’m trying to see if we can squeeze in a dance class for them because it’s something they’d really like to try.
Cecylia started taking bactrim again. That’s an oral antibiotic that helps to prevent pneumonia. She used to HATE to take this when she was first diagnosed. She would spit it out, scream, cry, it was worse than giving her chemo! Now, she’s taking it without much fuss. She doesn’t love it, but the alternative (and what she did when she was in treatment) was taking pentamidine through her port once a month. This was fine when she was on treatment, but we’d really like to have her port removed. It’s just one less thing to worry about. Because of the port, if Cecylia gets a fever we still have to go to the hospital to make sure the port is not infected. With her first school existence on the horizon, I’m sure she will be exposed to lots of germs. So, since she’s taking the bactrim, she is scheduled to have her port removed on August 14. It’s a small surgery, but please keep her in your prayers that day. Also, pray for all of those that will be taking care of her. The procedure will be done at Mott Children’s Hospital. It could be done at our local hospital, but I wanted the surgeon that started with us at the first biopsy and has done all of Cecylia’s other surgeries to be the one to remove the port. It seems fitting, emotionally, and I just feel comfortable with this surgeon. This surgeon used to operate out of both Mott and Beaumont hospitals, but now she is only available to us at Mott. I will update everyone about how this goes. Thank you all so much for your love, prayers, and support. I’ve been reading my old posts and I can’t believe what a journey we’ve been on. I know we couldn’t have gotten through it without our amazing family and friends!